OUR LUPUS STORIES

Six people touched by lupus, either as sufferers or as family members, share their lupus stories with us, to show how different and unlikely each individual lupus journey can be.

Mary’s Lupus Journey

Hello everyone, I’m Mary. I’m a daughter, a sister, an aunty, a friend. I’m a wife to my awesome husband Peter and a mum to my beautiful four legged boy, a golden retriever named Shandy….and I have Systemic Lupus Erythematosus (SLE), more simply known as lupus…. but...

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Jenny’s Lupus Journey

Hi my name is Jenny. I am a 60 year old woman who has been living with lupus for over 30 years. My journey with Lupus began in mid-1985 after the birth of my daughter in December 1984. Initially I put all my symptoms down to my new experience of...

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Caroline’s Lupus Story

My name is Caroline. I am in my 60’s and have been retired since 2015. My husband and I have a large blended family of adult children and adult step children. My current claim to fame is that I have 14 beautiful grandchildren! In my working life I was a...

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Mark’s Lupus Journey

Hi my name is Mark. I'm 54 years young. I'm a husband and a father of two great kids I'm a plumber and love my job. In the beginning I didn't know what I had. Doctors just fobbed me off for years. Then after I moved from the U.K to Australia I got a new...

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Jules’s Lupus Journey

My first lupus flare two years ago landed me in hospital with a variety of unusual symptoms that doctors diagnosed as viral meningitis. It was the first time I had experienced anything like it, and as a 31 year old woman focussed on my career, it was a...

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Eddie’s Lupus Journey

I am Eddie Phillips. I am a 58 year old retiree and primary carer for my wife Julie, who has suffered with lupus for over 30 years. A synopsis of my journey so far Julie was diagnosed with Polymorphic Light Eruption (Discoid Lupus was not a diagnosis back...

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Do you have a lupus story you'd like to share?

About Lupus WA

WHO ARE WE? INTRODUCTION Lupus WA a volunteer not-for- profit organisation was originally formed in 1979. It became an incorporated body in 1986. The demands on a totally volunteer based organisation are enormous and multifaceted. Changes in volunteer status and...

What Is Lupus?

What Is Lupus?

Have you ever wondered, what is Lupus? Lupus is a chronic and complex autoimmune disease Approximately 40,000 Australians live with Lupus Lupus causes immune system to attack the body's own tissues and organs Systemic Lupus (the most common form) can impact any tissue...

The Faces of Lupus

The Faces of Lupus

Introducing MARY ERCEG Mary is a regular Happy Physio members; she attends three Physio Pilates classes at the Mt Lawley studio each week. For more than four decades, Mary has lived with Systemic Lupus, and she is a strong advocate for the benefits of including...